Big Data for Public Health Policy-Making: Policy Empowerment

Laura Mählmann, Matthias Reumann, Nikolaos Evangelatos, Angela Brand

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Digitization is considered to radically transform healthcare. As such, with seemingly unlimited opportunities to collect data, it will play an important role in the public health policy-making process. In this context, health data cooperatives (HDC) are a key component and core element for public health policy-making and for exploiting the potential of all the existing and rapidly emerging data sources. Being able to leverage all the data requires overcoming the computational, algorithmic, and technological challenges that characterize today's highly heterogeneous data landscape, as well as a host of diverse regulatory, normative, governance, and policy constraints. The full potential of big data can only be realized if data are being made accessible and shared. Treating research data as a public good, creating HDC to empower citizens through citizen-owned health data, and allowing data access for research and the development of new diagnostics, therapies, and public health policies will yield the transformative impact of digital health. The HDC model for data governance is an arrangement, based on moral codes, that encourages citizens to participate in the improvement of their own health. This then enables public health institutions and policymakers to monitor policy changes and evaluate their impact and risk on a population level.

Original languageEnglish
Pages (from-to)312-320
Number of pages9
JournalPublic Health Genomics
Volume20
Issue number6
DOIs
Publication statusPublished - 01-08-2018

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Policy Making
Public Policy
Health Policy
Public Health
Health
Information Storage and Retrieval
Research
Power (Psychology)
Delivery of Health Care
Population

All Science Journal Classification (ASJC) codes

  • Public Health, Environmental and Occupational Health
  • Genetics(clinical)

Cite this

Mählmann, Laura ; Reumann, Matthias ; Evangelatos, Nikolaos ; Brand, Angela. / Big Data for Public Health Policy-Making : Policy Empowerment. In: Public Health Genomics. 2018 ; Vol. 20, No. 6. pp. 312-320.
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Big Data for Public Health Policy-Making : Policy Empowerment. / Mählmann, Laura; Reumann, Matthias; Evangelatos, Nikolaos; Brand, Angela.

In: Public Health Genomics, Vol. 20, No. 6, 01.08.2018, p. 312-320.

Research output: Contribution to journalArticle

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