RARE-Bestpractices: A platform for sharing best practices for the management of rare diseases

D. Taruscio, C. Morciano, P. Laricchiuta, P. Mincarone, F. Palazzo, C. G. Leo, S. Sabina, R. Guarino, J. Auld, T. Sejersen, D. Gavhed, K. Ritchie, M. Hilton-Boon, J. Manson, P. G. Kanavos, D. Tordrup, V. Tzouma, Y. Le Cam, J. Senecat, G. FilippiniS. Minozzi, C. Del Giovane, H. Schünemann, J. J. Meerpohl, B. Prediger, L. Schell, R. Stefanov, G. Iskrov, T. Miteva-Katrandzhieva, P. Serrano-Aguilar, L. Perestelo-Perez, M. M. Trujillo-Martín, J. Pérez-Ramos, A. Rivero-Santana, A. Brand, H. Van Kranen, K. Bushby, A. Atalaia, J. Ramet, L. Siderius, M. Posada, I. Abaitua-Borda, V. Alonso Ferreira, M. Hens-Pérez, F. J. Manzanares

Research output: Contribution to journalArticle

7 Citations (Scopus)
Original languageEnglish
Article numberO14
JournalOrphanet Journal of Rare Diseases
Volume9
Issue number1
DOIs
Publication statusPublished - 11-11-2014

All Science Journal Classification (ASJC) codes

  • Genetics(clinical)
  • Pharmacology (medical)

Cite this

Taruscio, D., Morciano, C., Laricchiuta, P., Mincarone, P., Palazzo, F., Leo, C. G., Sabina, S., Guarino, R., Auld, J., Sejersen, T., Gavhed, D., Ritchie, K., Hilton-Boon, M., Manson, J., Kanavos, P. G., Tordrup, D., Tzouma, V., Le Cam, Y., Senecat, J., ... Manzanares, F. J. (2014). RARE-Bestpractices: A platform for sharing best practices for the management of rare diseases. Orphanet Journal of Rare Diseases, 9(1), [O14]. https://doi.org/10.1186/1750-1172-9-S1-O14